Jun 042012
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    • 查找临床试验:检索美国国家癌症研究所10,000+临床试验的清单,找出目前正在招募受试者。
    • 了解临床试验:为所有人提供以下信息“什么是临床试验,为什么临床试验重要,人们为何参与”。


3 Responses to “临床试验”

  1. My heart goes out to all the parents that have suffered because of the scarcity of good research on Autism and the concerns about autism and vaccines. I have a grand child who is severely autistic, we don’t think vaccines were responsible and neither do his wonderful parents or his sister. It is so hard to have an uncertain future and no clear answers. I do not know Andrew Wakefield but it seems to me that whatever he says it has not answered the questions that matter. In areas of low vaccines there are no lower rates of autism just more dead or disabled children.

    Wouldn’t it be great if patients could do their own valid research, get it published and learn how to understand research for themselves instead of having to depend on expert opinion only?

    We are working on this at ThinkWell. http://ithinkwell.org The British Medical Journal is setting up a program where patients/the public can become reviewers http://blogs.bmj.com/bmj/2014/01/17/tessa-richards-the-rise-and-reach-of-expert-patients/?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+bmj%2Fblogs+%28Latest+BMJ+blogs%29&g=widget_default and NHS choices has opened commentary on papers. It is time to bring plain language to the forefront as 50% of papers are now Open Access according to a blog by Hilda Bastion in Scientific American.

    The public can offer insight into areas that trials are not equipped for and this is valuable. It is important not to waste precious energy looking at where to level blame but rather what are ways we can solve unmet research questions.

    Quite a few years ago physicians were also disrupted by a lack of evidence and patient values in their work and decided to look at evidence based medicine. The history of what these doctors and scientists experienced is very similar to what patients and the public struggle with today. See what you think http://jama.jamanetwork.com/multimediaPlayer.aspx?mediaid=6391356 and http://www.bmj.com/about-bmj/article-clusters/evidence

    It might help to read the free Testing Treatments Book to see how evidence is formed, used and abused, I think there is not much about vaccines in there but it is a great tool to sharpen skills and it is easy for anyone to read with real life examples. You can get this by going to the book tab above.

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