行动计划:你能做的10件事情

  1. 确定对你重要的疗效问题
  2. 学会辨别不确定性,说出来,提出疑问,寻求真实的答案。
  3. 不要担心询问医生目前有哪些治疗方案,或是接受某种治疗方案会怎样,不接受又会怎样。
  4. 在考虑可能的治疗方案时,你可在www.ohri.ca或决策辅助网上找到有用的决策辅助信息。
  5. 浏览信息可靠的网站,如英国国家卫生署决策网。或者参考本书第12章 “那么,什么让卫生保健更好?” 
  6. 正确质疑那些毫无根据的宣称治疗取得“突破性进展”言论和媒体报道;注意媒体报道“数字”的方式,特别是标题中醒目的数字!
  7. 敢于挑战那些提供给你和你的家人的基于信仰和教义却无可靠证据可循的治疗方案。小心被“贴上”多余的疾病标签,同时要避免过度检查,即查明某疾病对于自己的风险高低。问问如果不马上采取措施会怎样。
  8. 只有符合以下情况,方可参与临床试验:1)研究方案已注册并公开可得;2)方案参考了现有证据的系统评价,并能说明试验是合理的;3)收到书面保证,其所有研究结果都会被发表,并发给所有希望了解情况的参与者。
  9. 鼓励并与卫生专家、研究人员、研究资助者以及其他人合作,他们试图通过研究来解决关于你所看重的疗效方面未能解决的问题。
  10. 鼓励更为广泛地开展针对偏倚和偶然因素影响的教育,劝说当选的政治代表及其他想要在学校课程中强调此类教育的人:行动起来,并从小学做起。

5 Responses to “行动计划:你能做的10件事情”

  1. Ian Chalmers may be able to negotiate this sort of thing with his doctors, but in the seven minute consultation I get with my NHS GP a discussion of the evidence is simply a fantasy, and challenging the evidence is likely to end the consultation there and then.

    • Don’t despair, K991! Many of yesterday’s fantasies have become today’s realities. If you care enough about getting clear answers to some of the questions that are most important to you, you’ll be more likely to be successful in getting them, even within a 7-minute consultation.

  2. Book a double appointment so these needs can be addressed. Your GP wouldn’t consider treatment on her/himself without considering these questions why should you? Also many of these questions can be answered by you finding information yourself online through sites like NHS choices and the treatments may also be ones that are not offered via the healthcare system so all the more reason to check out the details to avoid being hurt or scammed. The first three questions should be part of any info pack about your treatment. It is important to find a GP you trust with your health questions and who respects your values. It is reported that listening to the patient only takes an extra 90 seconds of time on average.

  3. I like it too! We watched it as part of the learning process in the MOOC Theme group at EBHC2013. Good viewer response. We need these simple accurate messages to advance science and ethics in the public domain…thank you

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